Written by Intern Rency Gomes ||Team Allycaral
Panaji, January 31, 2026:
The Women’s Group of the Hemophilia Society Panaji Chapter actively took part in the Lok Utsav festival held on January 27, 2026, using the platform to raise awareness about hemophilia — a genetic bleeding disorder that affects the body’s ability to clot blood and requires lifelong management.
Members of the group distributed educational pamphlets and engaged with festival-goers through one-on-one interactions, sharing information on the symptoms, diagnosis and treatment options available for hemophilia. Volunteers also spoke about the social and medical challenges faced by individuals and families living with bleeding disorders.
Speaking at the event, Sabina DaCunha, Women’s Wing President of the Hemophilia Society Panaji Chapter, highlighted the critical role of awareness and early diagnosis. She noted that while hemophilia predominantly affects men, women are carriers of the gene and may themselves experience symptoms such as heavy or prolonged bleeding and irregular menstrual cycles. She stressed the importance of testing for bleeding disorders to prevent long-term complications and permanent disability caused by delayed detection.
The Hemophilia Society Panaji Chapter is affiliated with the Hemophilia Federation (India), a national patient organisation supporting over 30,000 individuals across the country. Through advocacy, education and community outreach, the organisation works to improve access to care while reducing stigma associated with bleeding disorders.
Advisor to the Hemophilia Society Panaji Chapter, Prakash Kamat, also addressed visitors during the event. Avelino de Sa, Founder and President of the Disability Rights Association of Goa, and Festakar Marius Fernandes, were present and extended their support to the awareness initiative.
The participation at Lok Utsav forms part of the chapter’s ongoing community health efforts aimed at empowering families with information, encouraging early diagnosis and fostering a more inclusive environment for people living with hemophilia.
