Tag: hemophilia awareness

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Hemophilia Society Panaji Chapter Women’s Group Raises Awareness at Lok Utsav Festival

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Written by Intern Rency Gomes ||Team Allycaral 

Panaji, January 31, 2026:
The Women’s Group of the Hemophilia Society Panaji Chapter actively took part in the Lok Utsav festival held on January 27, 2026, using the platform to raise awareness about hemophilia — a genetic bleeding disorder that affects the body’s ability to clot blood and requires lifelong management.


Members of the group distributed educational pamphlets and engaged with festival-goers through one-on-one interactions, sharing information on the symptoms, diagnosis and treatment options available for hemophilia. Volunteers also spoke about the social and medical challenges faced by individuals and families living with bleeding disorders.

Speaking at the event, Sabina DaCunha, Women’s Wing President of the Hemophilia Society Panaji Chapter, highlighted the critical role of awareness and early diagnosis. She noted that while hemophilia predominantly affects men, women are carriers of the gene and may themselves experience symptoms such as heavy or prolonged bleeding and irregular menstrual cycles. She stressed the importance of testing for bleeding disorders to prevent long-term complications and permanent disability caused by delayed detection.

The Hemophilia Society Panaji Chapter is affiliated with the Hemophilia Federation (India), a national patient organisation supporting over 30,000 individuals across the country. Through advocacy, education and community outreach, the organisation works to improve access to care while reducing stigma associated with bleeding disorders.

Advisor to the Hemophilia Society Panaji Chapter, Prakash Kamat, also addressed visitors during the event. Avelino de Sa, Founder and President of the Disability Rights Association of Goa, and Festakar Marius Fernandes, were present and extended their support to the awareness initiative.

The participation at Lok Utsav forms part of the chapter’s ongoing community health efforts aimed at empowering families with information, encouraging early diagnosis and fostering a more inclusive environment for people living with hemophilia.

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Empowering Hemophilia Patients: Hemophilia Society Panaji Chapter and Intas Foundation Join Hands

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In a remarkable display of community spirit and dedication to healthcare, the Hemophilia Society Panaji Chapter, in collaboration with Intas Foundation, organized a highly successful Factor Distribution and Physiotherapy Program at Hotel Mayura, Mapusa. This impactful event, supported by Dr. Praktisha Khalap, brought together patients, families, and experts to promote hemophilia awareness, management, and support.

Physiotherapy Session and Exercise Kits Distribution

A key highlight of the program was the physiotherapy session, expertly conducted to educate patients on effective management techniques for hemophilia. To further empower patients, exercise kits were distributed, providing them with the necessary tools to maintain their physical health and mobility.

Community Support and Awareness

Shri Nikhil Palekar, Police Inspector of Mapusa Police Station, graced the event as the chief guest, emphasizing the importance of community support and safety for individuals with disabilities. His presence underscored the need for collective responsibility in creating a more inclusive and supportive environment.

Disability Sensitization and Hemophilia Awareness

Mr. Prakash Kamat, Society Advocacy Ambassador, delivered a thought-provoking talk on disability sensitization and hemophilia awareness. His insightful presentation aimed to dispel misconceptions and promote a deeper understanding of hemophilia, encouraging empathy and support.

A Program of Hope and Empowerment

The Factor Distribution and Physiotherapy Program benefited 20 patients and their families, providing them with clotting factors, physiotherapy guidance, and exercise kits. This comprehensive support system not only addressed their medical needs but also fostered a sense of community and connection among patients and families.

The Hemophilia Society Panaji Chapter and Intas Foundation’s collaborative effort demonstrates a commitment to improving the lives of individuals with hemophilia. By promoting awareness, providing support, and empowering patients, they are paving the way for a more inclusive and compassionate society.

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Hemophilia Society Panaji Chapter Hosts Successful Education Program in Sawantwadi

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The Hemophilia Society Panaji Chapter recently organized a highly informative education program at Hotel Mango in Sawantwadi, which was attended by 45 patients and parents. The event featured a range of sessions focused on medical advancements, psychological support, and advocacy for hemophilia patients and families.


The education program included expert sessions by renowned specialists in the field of hemophilia. Dr. Makrand Gore delivered a comprehensive presentation on the latest treatments available for hemophilia patients. Psychologist Ms. Riya Sawant shared valuable insights and coping techniques to help patients and families manage the psychological aspects of living with hemophilia.

Journalist Mr. Prakash Kamat emphasized the importance of advocacy for hemophilia patients and families, highlighting the need for increased awareness and support. Dr. Bhavna Telang provided updates on the availability of clotting factor, a crucial aspect of hemophilia treatment.


On the occasion of International Women’s Day, the chapter’s women’s group celebrated by cutting a cake, honoring the strength and resilience of women in the hemophilia community. This included caregivers, carriers, and those with bleeding disorders, who play a vital role in supporting patients and families affected by hemophilia.


The education program organized by the Hemophilia Society Panaji Chapter aimed to empower patients and families with knowledge, support, and advocacy. By bringing together experts and stakeholders, the event facilitated meaningful discussions and connections, ultimately strengthening the hemophilia community in the region.


If you or someone you know is affected by hemophilia, consider reaching out to the Hemophilia Society Panaji Chapter for support and resources. Together, we can work towards creating a more inclusive and supportive environment for individuals and families affected by hemophilia.